Most don't know my daughter suffers everyday from a rare genetic disorder. Yes, she suffers every...single...day...it's tough. Here's our story and how we are coping. My daughter was born 7 years ago on a very hot and humid August night. I was 41 weeks along, labor didn't go as planned. Just my luck. I couldn't dialate after hours of trying and loads of medication I began dialating and very happy as I had received my 1st epidural, my 3 boys were all natural, pain free births. The complications that arose with my daughters birth I opted to have an epidural. She was born healthy, happy, calm...she was so perfect. Fast forward...as she grew she lacked thrivement, she lacked meeting basic milestones. I was stunned, I knew all babies are differently and certainly I couldn't compare her to my boys, her siblings. At 9 months old my daughter was unable to sit up, crawl, or even hold her own head up. Doctor after doctor for months pleaded with me she was just...nor...
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